An in-depth look at living with Multiple Sclerosis by host Cindy Locke and guests. Cindy was diagnosed with RRMS in 2006 and shares news, updates, events, MS hacks, etc. with you!
Episodes
Tuesday Aug 04, 2020
Tuesday Aug 04, 2020
This episode is part three of the story of my HSCT experience. I continue to take you on the journey of my HSCT experience and tell you my results so far 1 year past my procedure.
Below I am listing locations where HSCT is available as of now.
Stay strong and stay safe!!
HSCT (Hematopoietic Stem Cell Transplantation) attempts to “reboot” the immune system, which is responsible for damaging the brain and spinal cord in MS. In HSCT for MS, hematopoietic (blood cell-producing) stem cells, which are derived from a person’s own (“autologous”) bone marrow or blood, are collected and stored, and the rest of the individual’s immune cells are depleted by chemotherapy. Then the stored hematopoietic stem cells are reintroduced to the body. The new stem cells migrate to the bone marrow and, over time, produce new white blood cells. Eventually, they repopulate the body with immune cells.
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Links for current HSCT providers:
Contact me cindylocke47@gmail.com
Monday Jul 27, 2020
Monday Jul 27, 2020
This episode is part two of the story of my HSCT experience. I continue to take you on the journey of my HSCT experience and tell you my results so far 1 year past my procedure.
Below I am listing locations where HSCT is available as of now.
Stay strong and stay safe!!
HSCT (Hematopoietic Stem Cell Transplantation) attempts to “reboot” the immune system, which is responsible for damaging the brain and spinal cord in MS. In HSCT for MS, hematopoietic (blood cell-producing) stem cells, which are derived from a person’s own (“autologous”) bone marrow or blood, are collected and stored, and the rest of the individual’s immune cells are depleted by chemotherapy. Then the stored hematopoietic stem cells are reintroduced to the body. The new stem cells migrate to the bone marrow and, over time, produce new white blood cells. Eventually, they repopulate the body with immune cells.
_____________________________________________________
Links for current HSCT providers:
Contact me cindylocke47@gmail.com
Wednesday Jun 17, 2020
Wednesday Jun 17, 2020
This episode is part one of the story of my HSCT experience. The beginning is a description of HSCT, who is eligible, and the benefits. After, I begin the story of my journey.
Below I am listing locations where HSCT is available as of now.
Stay strong and stay safe!!
HSCT (Hematopoietic Stem Cell Transplantation) attempts to “reboot” the immune system, which is responsible for damaging the brain and spinal cord in MS. In HSCT for MS, hematopoietic (blood cell-producing) stem cells, which are derived from a person’s own (“autologous”) bone marrow or blood, are collected and stored, and the rest of the individual’s immune cells are depleted by chemotherapy. Then the stored hematopoietic stem cells are reintroduced to the body. The new stem cells migrate to the bone marrow and, over time, produce new white blood cells. Eventually, they repopulate the body with immune cells.
_____________________________________________________
Links for current HSCT providers:
Contact me cindylocke47@gmail.com
Monday May 18, 2020
Monday May 18, 2020
This is a short episode about Covid19 and how we are dealing with being quarantined. I read a couple of listeners' experiences and also give much-needed advice from a doctor and great links to get some help if you need it.
We are all in this together, Warriors! Stay strong and stay safe!!
Links:
Food Assistance - https://teamrubiconusa.org/
MS Society Covid19 Information
Contact me cindylocke47@gmail.com
Monday Feb 24, 2020
Monday Feb 24, 2020
Another much-needed conversation. This episode is regarding the hate we get from uninformed people. This one is about those of us with invisible illnesses who get sneered at, dirty looks, mean comments and hurtful notes on our cars because we park in a handicap spot and don't visibly look ill. Join MS warrior Katie in her plight to get us an "invisible illness" parking placard. Listen on as we talk about examples of what some people struggling with visible illnesses go through daily when they mind their own business, fighting an unbearable struggle, and getting berated when parking in a handicap parking spot.
From Katie:
Invisible diseases and disabilities are real! If you have been diagnosed with an invisible illness or know a friend or family member that has one, unfortunately, they can be targeted for cruel acts.
Have you ever had a nasty note left on your car? Or have you been harassed? Has your vehicle been vandalized? Have the police ever been called on you for using your handicap placard?
These are cruel acts that happen every day, and it has to stop!
I created a petition on change.org to do just that! This appeal is to help spread awareness for invisible diseases and disabilities and to help educate the society that we live in today.
PLEASE click on the link below to sign the petition.
⬇️⬇️⬇️⬇️⬇️⬇️⬇️
Contact me cindylocke47@gmail.com
Sunday May 26, 2019
Sunday May 26, 2019
I had such an incredible time when I sat in on Entertainment Weekly Radio's LA Daily show with Julia Cunningham. For two hours, we talked Pop Culture, and I was able to do some MS Awareness. Love this show!
Each day Julia Cunningham and Kyle Anderson are live from the West Coast diving deep into the details of pop culture. They are covering talking about all of the shows and movies that you love, to the shows they love to watch so you don't have to. Every weekday your pop culture best friends will bring you everything happening in entertainment, from the West Coast.
LA Daily SiriuxXM Entertainment Weekly Radio Monday to Friday, 4 - 6 pm PST
Contact me cindylocke47@gmail.com
Wednesday May 22, 2019
Wednesday May 22, 2019
This is a wonderful and much-needed conversation regarding the depression we feel with Multiple Sclerosis.
Dr. Adam Kaplin completed his undergraduate training at Yale University and his MD and Ph.D. training at the Johns Hopkins School of Medicine.
His research training experience includes having trained in the labs of two Nobel Laureates, and completed his Ph.D. and postdoctoral training in the Lab of Solomon Snyder, MD, who was the 2005 recipient of the National Medal of Science (the highest scientific honor in the United States).
Dr. Kaplin is the Chief Psychiatric Consultant to the Johns Hopkins Multiple Sclerosis and Transverse Myelitis Centers, where he is an integral member of the clinical and research endeavors at these Centers of Excellence. Dr. Kaplin investigates the biological basis of the effects of the immune system on mood regulation and cognition, and he provides neuropsychiatric care to patients afflicted with such comorbidities. His research is focused on understanding the biological basis of depression and dementia and discovering new ways to diagnose prognosticate and treat these diseases.
Dr. Kaplin has also been involved in helping to develop and apply technological innovations to improve patient care and clinical research, especially as it applies to mental and behavioral health. He is the inventor and co-developer of www.mood247.com, an automated mood tracking technology that also serves as a personalized, patient-controlled electronic health diary. For this work, he won the Inaugural Elsevier Clinical Keys Innovator Award 2013, and the 2015 PM360 ELITE Tech-Know Geek Award. His work using mHealth technology to prevent suicide has resulted in him consulting with the Pentagon and speaking at the Whitehouse on several occasions.
Dr. Kaplin is on the board of medical advisors to the Montel Williams MS Foundation, Cody Unser First Step Foundation, Nancy Davis MS Foundation, Center Without Walls, and Johns Hopkins Multiple Sclerosis and Transverse Myelitis Center’s Project RESTORE. He is also a medical advisor to Remedy Health Media, Anthrotronix Inc, and Revon Systems. He has presented his work through published articles in premier scientific journals and through talks and seminars at national and international conferences.
988 Suicide & Crisis Lifeline
Contact me cindylocke47@gmail.com
Wednesday May 22, 2019
Wednesday May 22, 2019
My podcast will be weekly for now and will be uploaded on Mondays. It’s only 20 minutes long, so it won’t take much of your time! Just click on the link, and there you go! I will share my contacts, tips, stories, listener stories, and experiences I’ve had over the last 18 years. Some of the subjects I will be discussing will be parenting, dating, divorce, diet, exercise, depression, traveling, stem cell treatment, memory, disability, and it’s much more. There will also be interviews with MS doctors, patients, kids of parents with MS, foundations, psychiatrists specializing in MS, and celebrities with MS. Some interviews will be verbal, and some will be video. There will also be tips for living with MS.
Each week, I will let you know what next week’s podcast is about, and most of the time, I will ask you to email me your stories or ideas on that topic.
https://timekeepsticking.podbean.com/
Contact me cindylocke47@gmail.com